Next stop: Hospice
My mom is being moved to hospice tomorrow after a bed opened up for her. My brother and I went to see it last week, and it's quite nice. They converted an old villa for it, the rooms are quite big, a big terrace, in a quiet street. They have their own cooks, so no hospital food (not that she's eating right now). The dogs can come visit too. It's also way closer to where we and all her friends live.
I love the people in the palliative care unit where she is now, esp the psychologist. Finally someone is taking responsibility for making things happen in her care, and I don't feel like I have to spend every minute with her just to make sure she gets what she needs. Unfortunately, she can't stay there indefinitely.
The metastases have been messing with her brain quite a bit since the beginning of the week (she was doing quite well before that), with language problems, disorientation and agitation, so another course of chemo is out of the question. I guess that means this is the beginning of the end.
It's difficult to see her like this, though thankfully the palliative people have not been afraid to pull all the stops with pain meds and sedatives to keep her calmer. Nobody knows what's really going on -until this most recent episode, she was able to move back and forth from her altered mental state quite quickly, as if a switch was being thrown in her brain. They can't tell if she'll regain clarity from this episode. All I want is for her not to be too aware of what's going on with her -it's like my mom isn't really there anymore, anyway.
Tam was right when she said back in January when they found the first two brain mets that this was going to be the hardest year of my life.
I love the people in the palliative care unit where she is now, esp the psychologist. Finally someone is taking responsibility for making things happen in her care, and I don't feel like I have to spend every minute with her just to make sure she gets what she needs. Unfortunately, she can't stay there indefinitely.
The metastases have been messing with her brain quite a bit since the beginning of the week (she was doing quite well before that), with language problems, disorientation and agitation, so another course of chemo is out of the question. I guess that means this is the beginning of the end.
It's difficult to see her like this, though thankfully the palliative people have not been afraid to pull all the stops with pain meds and sedatives to keep her calmer. Nobody knows what's really going on -until this most recent episode, she was able to move back and forth from her altered mental state quite quickly, as if a switch was being thrown in her brain. They can't tell if she'll regain clarity from this episode. All I want is for her not to be too aware of what's going on with her -it's like my mom isn't really there anymore, anyway.
Tam was right when she said back in January when they found the first two brain mets that this was going to be the hardest year of my life.
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